Tragic Katy Doyle’s family in line for top award

Aug 1 2010 by Coreena Ford, Sunday Sun

In the months after her death Katy’s parents Helen, her husband Ian, and health improvement specialist Stewart, began campaigning for more information to be made available to people with epilepsy and their families when they are diagnosed.

They also called for this to be followed by essential, comprehensive care plans.

Soon after losing her daughter, Helen, assistant director of human resources at Newcastle University, said: "The loss of a child is beyond belief but to know that it didn’t have to happen makes it so much worse.

"It is clear that there is a lot of information produced about epilepsy but this information is in a lot of different places and is not getting to those who really need it to enable them to live their lives as safely as possible.

"A specialist nurse can support a neurologist and the individual in providing essential information and access to community and multi-agency services.

"This is not happening in many areas, both regionally and nationally. We need action not words."

And the family have certainly taken action of their own.

Last year, 54 of the Doyles’ family and friends ran the Great North Run for Katy, handing out her favourite sweets and drink – vodka and coke – at the finish.

They also organised a fundraising "celebrating Katy" event, and Helen and Stewart are also planning a sponsored trek along the Great Wall of China.

The pair will take part in the challenge along the monument in aid of Epilepsy Action, from October 9 to 17 in a trip which will also see them help to rebuild the wall in some places, as a lasting tribute to Katy.

Candis magazine editor Debbie Attewell said: "The Doyles really are an inspiration.

"We were hugely moved by their determination to remember Katy in such a positive life-affirming way, and the whole family has pulled together for a great cause."